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  • Drug Gives Normal Life Back To Boy With Parkinson's Disease
    Even playing on the video game's next-to-impossible expert level, the seventh grader can shred like Joe Perry.

    But a couple of months ago, Andrew would have been lucky to make it through half of his favourite song, Aerosmith's Walk This Way every morning, Andrew woke up in a sweat, his head pounding and his body stiff. The muscles along the left side of his body cramped constantly. Eating was torturous. He lost his balance easily, crashing down the stairs at home with enough force to break the railing.

    After two years of endless doctors' appointments, Andrew was diagnosed with Parkinsonism in May.
    Parkinsonism is often caused by Parkinson's disease, a neurodegenerative disorder caused by the death of the cells that produce dopamine, a chemical that carries signals between the nerves and the brain. Symptoms include muscular stiffness, shaking, impaired balance and slow movement.

    It's extremely rare for children to be diagnosed with Parkinson's."The average age is about 56," said Ray Williams, executive director of the Parkinson's Society of Alberta, which has been providing support to the Carnegies since Andrew's diagnosis. "But 11 years old, and he has Parkinsonism - that's the youngest one that we're certainly dealing with here, for sure."

    Because it is so uncommon, doctors had a hard time pinpointing what was wrong with Andrew. The Carnegies were referred to a laundry list of pediatricians, neurologists and specialists, sometimes waiting months for appointments, only to be disappointed by doctors who said there was nothing they could do. All the while, Andrew's condition got worse.

    "It was like this miracle drug," Deirdre said. Now, Andrew takes Sinemet five times a day and life is pretty much back to normal.

    He even plans to take part in the Parkinson's Society's SuperWalk in September."I don't care about it anymore. It's not a big ordeal. It's like the door prize that nobody wants," he said simply. "I'm still normal."

    With sick children, the Carnegies said parents have to be tenacious-do research, document every detail, and keep copies of medical records. "For other parents, they have to be proactive too," Deirdre said.

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